What we do - Have your say! - Other local and national surveys and consultations

See below for other local and national surveys, consultations, petitions, etc. you might like to take part in.

New Young Pioneer News!

Please see posters below for the latest news, who Young Pioneers are and how to get involved.

“All young people should be Pioneers in designing their futures! Help Wiltshire Centre for Independent Living (WCIL) to share their views and voices!”

Please contact getinvolved@wiltshirecil.org.uk for further information or call Sharon, Abbie or Rachael on: 0300 1233442

Non-Speaking Autistic Children’s and Adolescent’s Mental Health Survey

Klaudia Niemiec is a researcher from the University of York and would like to invite you to participate in a research project that explores 'How does attending social groups impact non-speaking autistic children's and adolescents' mental wellbeing?'

Please find in attachments a flyer (Participant Recruitment Leaflet.jpg) that includes information about the study, the eligibility criteria and a link/QR code for the survey.

Each parent's unique insights and perspectives on non-speaking autism are incredibly valuable and could greatly enrich research findings.

Aimee is also working on a research study that explores the mental wellbeing of non-speaking autistic children, while also assessing the support available to them. They are interested in hearing the experiences of parents/caregivers of children aged 4-19 years.

The study involves taking part in a 10-minute, online questionnaire about wellbeing priorities and gaps and strengths of current support. All responses are anonymous and there is no obligation to answer every question.

Please see flyer below for QR code to complete the survey.

BANES, Swindon & Wiltshire (BSW) Experiences of Young People’s Transition from CAMHS at 18 years Old – Parent Carer and Young People’s Surveys

Oxford Health Foundation Trust Child and Adolescent Mental Health Service (CAMHS) and Avon and Wiltshire Partnership Trust Mental Health Service (AMHS) are keen to better understand the experience of young people and their parents/carers as they transition at 18 years of age from CAMHS to AMHS in Wiltshire, Bath and North East Somerset and Swindon.

The surveys below are for parent carers and young people who have had experience of transitioning from CAMHS at 18 in the last 2 years.

This survey will take 5 minutes to answer. Your input will help shape the future of this important process.

The focus on learning from these surveys will happen in one area at a time starting with Wiltshire and in time moving on to Bath and North East Somerset and Swindon as a fuller picture of need is developed.

The aspiration is that every young person under CAMHS will receive information about a range of options in adult mental health services, be asked their views to add to any adult mental health service referral and receive information on support available for parents/carers.

Responses will be stored and analysed in a group with other responses by a joint CAMHS and AMHS service development team, in order to improve services for young people in the future. It will not be linked to your young person’s clinical records or used to inform their individual care. If you would like to discuss your young person’s individual care please contact their clinician(s).

The surveys will be anonymous unless you choose to provide your details to be contacted to join a focus group or take part in a semi-structured interview.

Please click on the links below or scan the QR code to take part in the surveys:

[Parent carer survey]





[Young people's survey]



The surveys will be open until the end of March 2024, however, the results will start to be used by the service development team before this time.

What Would you Like to See in a Paediatric Hospital Passport?

A hospital passport is a document that provides information about children and young people that healthcare professionals can read. Somerset NHS Foundation Trust along with other trusts across the region, are working with NHS England, and the South West Region of Parent Carer Forums, to create a singular paediatric hospital passport that can be used throughout the South West region.

They have created a questionnaire to give you a chance to have your voice heard about the features you would like to see within the regional paediatric hospital passport.

Please click [here] to go to the questionnaire.

This questionnaire is for parents, carers, and healthcare professionals alike. The passport is for any child, or young person who would like one. This can include children with learning disabilities, complex care, mental health disorders, or any child who regularly attends hospital.

They would like your input as to what features are put into the passport. The answers to this questionnaire will help develop the next paediatric regional hospital/health passport. They greatly appreciate your time in filling out the answers and sharing this with your contacts.

For any more information on hospital passports, please visit: [Hospital Passport].